Saturday, June 2, 2012

Still Chatting to Myself????

So I don't know if anyone is actually reading anything I am writing or not but hey, at least I am still at it. Which is awesome.

Update on my goals, broke my no soda rule...need the caffeine today but other then that I am doing really good. I have been writing everything down in my food journal including any beverages. And how I am generally feeling and/or done throughout the day.

I almost didn't blog today because my head pressure was starting to really get to me..in fact, I am having a hard time focusing on the screen and seeing the words. Even though today is a hard day, it is important that I write especially today...it is the only want people can truly understand what happens on one of my "bad" days.

Here is how my day was SUPPOSE TO GO-
 Today was a long-time friends wedding, and I was suppose to go help her get ready, setup the church & reception hall....and be normal; celebrate my two friends joining into marriage.

I started out okay, went up the hill to see my friends who were selling things at a community yard sale, even bought some stuff for my house. About an hour into my morning, my head started pounding, my eyes started hurting, and my neck went stiff. Have you ever gone to a concert and stood by the speaker? By the time you leave the concert, you have the ringing in one or both ears...well, I didn't go to a concert and it was a ringing/whooshing sound in my ears. People have noticed my eyes looking "glassy" (probably because the pressure constricts the optic nerve) and my face gets red...or maybe it feels red to me.

Needless to say, I missed my friend's wedding and I am down for the count at home. 

Friday, June 1, 2012

A Minor Soapbox of Wisdom & Goals for Me

After maybe 5 hours of sleep last night...in a blink of an eye, my small town has soared into the heat of summer so not much sleep here on my end. Plus I got a new "toy" for my laptop and I HAD to play with that *HEHEHE* In the long run, it probably was not the best plan that has popped into my head at my age but we all need to revert to our childhood every now and then right?

Between the heat and someone sending me a text message at 6 AM, I was bound to wake up early I suppose. Let me just give you a side of wisdom---unless you really and I do mean REALLY know the person well, do not text someone at 6 AM, please wait until at least 8 AM or even better 9 AM.  That was just my public service announcement for the morning.

Today my goal is to get outside and do some more gardening. Right now I am creating a container garden on my walkway & porch of flowers and actual fruits/veggies. In window boxes, I placed some strawberry plants along with my other potted flowers of Gerber daisies, dwarf snapdragons, and the seedlings of fruit pits that I planted last summer. To much of my delight they started taking off this spring...so hopefully I will have some fruit trees in the near future. Just have to remember what is what. LOL And later, I am going to pick up heirloom tomatoes & cucumbers. These will line the sidewalk up to my porch with hibiscus, gardenias, and other amazing flowers. 

I should note that my goals for the days are just that with disease, they are goals. And as much as I try to get everything done or do the things I love to do/just use to doing...I some times just don't get to. The other goal for me to do today is a health goal. Last night, I signed up for a new program that is shaking our area with some great results...I am going to give it a try. But until in comes in, and since it is the 1st of June, I am going to take down all of my measurements and journal all of my food intake. Plus give up my soda friends!!! It is a lot and it is all at once, but I can do it and it is for my health.

Here are my goals:
1. To get healthier of course!!!
2. To see if if changes my brain at all...the theory is that is you lose weight, the disease will go away, but in some cases, that has not been what happens at all.
3. To reduce the overall swelling in my body that is caused by my disease.
4. Help my energy level so I am not exhausted all the time. My disease has me wiped and I don't like that.

So stay tuned.....

My First Posting on My Blog

Okay so I have been playing with this idea for awhile and now I am actually making it happen. For those of my friends who do I know will not read my blog, I better introduce to the rest of you who may actually read my scribble. Who knows, I may even throw in some videos here and there.

My name is Steffanie and I live in a town where everyone (well, almost everyone knows my name or someone in my family) so needless to say there is never a dull moment. I love to be active...and who wouldn't when you live in the Sierra Nevada’s!!!! Between camping, hiking, horseback riding, gardening, swimming, fishing....and everything else that would go with it. As much as I love that stuff, I don't always don't get to do what I love due to an unusual brain disorder, intracranial hypertension that keeps me down. 

Basically, it squishes my brain...think of a sponge that you use to wash dishes. The sponge soaks up water and when you tighten your hand up over the sponge in a fist, the water rushes out of it because it has nowhere else to go. My diagnosis happened by accident & to be honest, if it had not been for my boss at the time, it probably would have missed diagnosed for awhile. I was blessed to have it diagnosed when I did and to be able to educate/advocate for others who may have an illness who don't otherwise don't look ill.

So hang on for an almost daily check-in as I just journal and hopefully inspire other to live their lives to the fullest. Like it has been said before, "Life is short, so live it to the fullest...ALWAYS!!!"
~Steffanie *Smiles*